Recurrence
Going back to the beginning we were told that a grade 3
Astrocytoma brain tumor was going to be a very tough one to deal with, and on
May 6, 2012 a routine follow up MRI found new tumor activity in several places
in the front of his brain and also in a particularly dangerous spot in the back
of his brain. So he restarted Temodar chemotherapy and after a month another
MRI was done. The scan showed that the activity had gotten worse so the Temodar
was discontinued.
Duke University
Medical Center,
Durham North
Carolina
David did his research and decided that Duke University
had an exceptional reputation for specializing with brain tumors. We met with
their neuro oncologist in September 2012 and they advised a new chemotherapy
regimen of 12 cycles of Avastin, Carboplatin, and CPT-11. They said that they
thought David “had a 50/50 chance”. I didn’t know for sure what that meant and
don’t want to know specifically because although I know they were trying to
impress us with how serious the situation was, I will keep my focus on any
options that I consider to be able to provide a cure. The medical people say
there is no cure. One thing I know for sure is that if you don’t look for what
you want, you probably won’t find it. So, I choose to believe that there is a
cure even if it means merely controlling the cancer until we find something
that will provide the cure.
New Chemotherapy Regimen Results
Our oncologist told us that most people that are ever able
to respond favorably to this combination of chemotherapy drugs show a
significant response after a couple months. David had never used any of these
drugs which they considered a positive thing. So we didn’t know what to expect.
His symptoms had increased significantly by the time he could start on these
drugs. He had a very positive response during the first administration of the
drugs, but that really didn’t mean anything for the long term, but at least he
got significant relief immediately.
Good News!
So, he has been receiving this new chemotherapy drug regimen
for the last several months. He has had MRI’s every other month after starting this
new regimen. The first 2 MRI’s showed a small amount of improvement but didn’t
give us the indication these drugs would be a significant help. Our neuro
oncologist told us that the third MRI would be critical in letting us know if
we were on the right track. Praise the Lord Jesus when the third MRI was done
it showed significant reduction in the rear tumor, and all the activity in the
front of his brain was no longer showing up on the MRI. We have just returned
from having the 4th MRI done and it again showed significant
improvement. The mid line of his brain is returning to its correct alignment
due to the reduction in swelling. Our oncologist is amazed at how well David
feels and how well he is tolerating these drugs. We don’t know what the future
holds, but David is very encouraged as are we, his parents. I’ll provide
another update after his next MRI in 2 months.
When We Think of Giving Up
So if you or a loved one have brain cancer with a dismal
prognosis and are wondering what the future holds, I pray that something in our
experience will give you hope and help you to pursue the possible healing
methods that may be the answer for your needs. Above all I’m trusting that the
Lord Jesus Christ is willing to lead us through these difficult times and in
many cases lead us to a cure if we are willing to let Him teach us how to
follow Him, learn His ways, and become sensitive to the leading of His Holy
Spirit. We must not give up while He is still working on our behalf. Here’s a
quote I found from Winston Churchill:
“Never give in--never, never, never, never, in nothing great
or small, large or petty, never give in except to convictions of honor and good
sense. Never yield to force; never yield to the apparently overwhelming might
of the enemy.” ― Winston Churchill
I perceive cancer to be a particularly evil method that the
forces of darkness use to hurt us, ruin lives, and ruin families. In the Bible
in the first letter to the church in the city of Corinth
the apostle Paul says in chapter 10 verse 13 Revised Standard Version (RSV):
I pray for you and for us that we’ll trust God to provide that “way of escape”, whatever it is, from this terrible disease.
October 8, 2013 Update
Regular MRI done in
early August 2013
The neuro oncologist thought there was a possibility that there
was new activity in the front of the brain and therefore ordered the next MRI
to be done a month earlier than normal which meant it would be done just one
month later. However, the radiologist's report from this August MRI said no disease
progression, stable. There seemed to be a possible contradiction.
Early MRI done in
early September 2013
The September MRI showed no tumor activity so the neuro oncologist
said to continue with the chemotherapy regimen my son had been on for the last
12 months. This seemed to confirm the radiologist's report from the August MRI which was very good news!
November 15, 2013 Update
MRI done November 5th indicates no tumor activity
anywhere except the possibility of one
new area in the center of his brain. I’m wondering if this could possibility be
a false positive reading. The radiologist report did not indicate there was new
activity in that area, but the neuro oncologist showed us a one millimeter area
that appeared to be new enhancement. The neuro oncologist recommended stopping the
CPT-11 and Carboplatin and substituting CCNU in their place. So now he’ll
continue Avastin every 2 weeks and take CCNU orally once every 6 weeks. He’ll
take the CCNU a total of four times if his bone marrow permits. He took CPT-11, Carboplatin, and Avastin by infusion for 14 months.